Friday, April 24, 2009

What makes a tough day

Somebody younger than me with a projected survival time of three months (we can do better with glioblastoma; renal cell carcinoma is "not responsive to treatment" once it's spread).

Somebody my age with an aggressive, bizarre, rare form of multiple-sclerosis-like neuromuscular disorder that takes your sight first, then your speech, but leaves your motor skills intact.

Somebody older than me with a family that treats her like a leper because she has MRSA.

Deciding, once and for all, to hold my tongue.


RehabNurse said...

*raises hand in agreement*

I've had one of those MRSA people. The family wouldn't let the patient use the phone in the house.

And supposedly a family member living there was a nurse.


Urbie said...

Well, I have to admit that I was careful around my Mom during her last few months -- didn't avoid touching her altogether, but... well, after seeing what MRSA did to *her*, I didn't want any part of it getting a shot at *my* innards. We were never a huggy family to begin with, so I doubt there was much difference in how often I touched Mom toward the end as compared with 20 years ago. I know it's a little paranoid -- but geezus, if you saw the X-ray of her shoulder, after the infection destroyed it, well, that's enough to freak out a layman, at least a little.

Anonymous said...

Wow. What a suck egg day. I call those do over days. Wake up tomorrow and hopefully do it over but just a little bit better.

jenny said...

I'm so glad to read you this post. It is so comforting to know that these horrible days and moods happen to the best of us and we are not alone. Thanks